This blog post is not about politics, but it does have a political tone because of the parties involved and my observation of a blown chance by the media to do some good for once. This is a critical statement on the mass media, not on any of the political candidates involved. For the record: I have respect for all four presidential and vice-presidential nominees. Further for the record: I believe the race is about the individuals and how they will lead our country, not about their individual family members. And lastly for the record: I am tired of hearing about this election, just give everyone a ballot Friday morning. {g}
I should have expected the news media to miss a great opportunity, but deep down I was hoping the media would have picked up on the issue of amazing parents raising children who are affected by the genetic condition of
trisomy. In the case of Sarah and Todd Palin, their son Trig has trisomy-21 most commonly referred to as Down syndrome. Instead the media decides to drill into the pregnancy of their daughter Bristol.
Parents who have trisomy children face a slew of medical decisions and situations that I believe pale most challenges any parents face, including pre-marriage pregnancy. How would I know? Our son Paul was born 12 years ago with
trisomy-18 (less commonly known as Edwards syndrome). Trisomy 21 and 18 are fundamentally the same thing, but significantly different results. Down syndrome children often live long somewhat normal lives. Trisomy 18 children have what the doctors described to us as a "life-incompatible" condition. No matter though, raising any trisomy child has its challenges and stresses.
Each time I see parents with trisomy children I recall the sleepless nights, the fights with the nurses and doctors, the give-comfort vs. extending life decisions, and putting a feeding tube down my son's throat hoping I was reaching the stomach and not his lung. I believe we averaged less than 4 hours of sleep a night in the two months Paul was here. Our time with Paul is the reason my favorite movie quote is from Hans Solo in The Empire Strikes Back:
Han Solo: Never tell me the odds. (in response to C-3PO's statement: Sir, the possibility of successfully navigating an asteroid field is approximately 3,720 to 1)
Each time we met with genetic doctors they explained the odds of survival to us. Same with the heart doctors (Paul's heart effectively had three chambers instead of the four because of a huge
ventricular septal defect (VSD)). The amount of stress it put on us did not kill us, so it only made us stronger, and *more* compassionate and understanding.
In the case of Joe Biden, the media focused on how great a dad Biden is for traveling hours each way to and from Washington. My hat is off to Mr. Biden for the choices he as made to provide the best life he could for his family. I feel this is further proof that the media is very biased and is working very hard to lean one way in their influence on all elections. Sickening.
I only have the highest respect for this family. It matters not to me that they are Republican or Democrat, caucasian or martian. They are human, earthlings just like the rest of us with real world problems. I am more amazed how this family decided with everything going on in their lives, that serving their country is something important too. I am not so sure too many other people on this planet would accept this challenge, yet have time to criticize the way they are raising their family.
Labels: Personal
